Resource Links for Neuropathy Support Groups

With our blessings, all articles may be reprinted or published free of charge. The only requirement is that the source and author be recognized. If any link does not work, please let us know by sending a message to gene@neuropathysupportnetwork.org.

NEUROPATHY SUPPORT NETWORK Articles and Links

What is neuropathy by Waden Emery III MD FAAN Clinical Neurologist?

http://neuropathysupportnetwork.org/what-is-neuropathy/

Frequently Asked Questions about Neuropathy

http://neuropathysupportnetwork.org/faq-about-neuropathy/

List of doctors on the website

http://neuropathysupportnetwork.org/neuropathy-doctors/

Questions on Peripheral Neuropathy

http://neuropathysupportnetwork.org/contact-the-neuropathy-support-network/

Books on Neuropathy

http://neuropathysupportnetwork.org/books-on-neuropathy/

NEUROPATHY JOURNAL Articles and Links

Alternative and complementary Medicines

http://neuropathyjournal.org/alternative-and-complementary-medicines-for-neuropathy/

One Man’s Journey

http://neuropathyjournal.org/one-mans-journey-with-neuropathy-2/

Celiac Disease and Neuropathy

https://neuropathyjournal.org/category/celiac-disease/

How to Diagnose Peripheral Neuropathy

http://neuropathyjournal.org/how-to-diagnose-peripheral-neuropathy/

Have Neuropathy – So Why are Tests Normal?

http://neuropathyjournal.org/have-neuropathy-so-why-are-tests-normal/

Small Fiber Neuropathy

http://neuropathyjournal.org/small-fiber-neuropathy/

Skin Biopsy for diagnosis of small fiber neuropathy

http://neuropathyjournal.org/skin-biopsy/

Living with Autonomic Neuropathy

http://neuropathyjournal.org/living-with-autonomic-neuropathy/

Will My Neuropathy Get Worse?

http://neuropathyjournal.org/will-my-neuropathy-get-worse/

Guidelines for Veterans, Agent Orange and Peripheral Neuropathy

http://neuropathyjournal.org/guidelines-for-veterans-va-proposed-law-agent-orange-and-peripheral-neuropathy/

Vietnam Veterans of America (Recommend veterans get their help)

“The VVA Self Help Guide

List of Navy Ships Exposed to Agent Orange

http://neuropathyjournal.org/list-of-navy-ships-va-presumptive-for-agent-orange-exposure/

Air Force C123 Pilots and Agent Orange

http://neuropathyjournal.org/important-update-on-c123-aircraft-crews-exposed-to-agent-orange/

Exercise and Neuropathy

http://neuropathyjournal.org/exercise-and-neuropathy/

The Problem with a Diagnosis of Idiopathic Neuropathy

http://neuropathyjournal.org/the-problem-with-a-diagnosis-of-idiopathic-neuropathy/

Neuropathy Types: How Important?

https://neuropathyjournal.org/neuropathy-types-how-important/

What Is Neuropathic Pain?

http://neuropathyjournal.org/neuropathic-pain-2/

How is Neuropathic Pain Treated?

http://neuropathyjournal.org/how-is-neuropathic-pain-treated/

Does neuropathy affect hearing?

http://neuropathyjournal.org/auditory-neuropathy/

Does neuropathy affect vision?

http://neuropathyjournal.org/category/optic-neuropathy/

Doctor Patient Relationships: Unlocking Doors

http://neuropathyjournal.org/doctorpatient-relationships-unlocking-doors/

Your choice is NOT among Cures, Treatments and Coping

http://neuropathyjournal.org/your-choice-is-not-among-cures-treatments-and-coping/

A Prayer for Support Group Leaders

http://neuropathyjournal.org/a-prayer/

Symptoms of Neuropathy

http://neuropathyjournal.org/symptoms-of-neuropathy/

Top Twenty Symptoms of Peripheral Neuropathy

http://neuropathyjournal.org/top-twenty-symptoms-of-peripheral-neuropathy/

Why We Need the NSN.

http://neuropathyjournal.org/why-we-need-the-nsn/

An Interactive Journal of Patients Helping Patients

http://neuropathyjournal.org/an-interactive-journal-of-support-patients-helping-patients-3/

http://neuropathysupportnetwork.org/faq-about-neuropathy/

Helping other patients

http://neuropathyjournal.org/principles-and-goals-for-patients-helping-patients/

The use of IVIG for Immune Mediated Neuropathies (12 articles)

http://neuropathyjournal.org/category/why-ivig/

Facts About IVIg.

http://neuropathyjournal.org/facts-about-intravenous-gamma-globulin-article-1-of-12/

My Neuropathy Symptoms prior to receiving intravenous gamma globulin.

http://neuropathyjournal.org/my-neuropathy-symptoms-prior-to-receiving-intravenous-gamma-globulin-ivig-2-of-12/

Why I started Intravenous Gamma Globulin (IVIg) and how it happen

http://neuropathyjournal.org/why-i-started-intravenous-gamma-globulin-ivig-and-how-it-happen-3-of-12/

My first experience with Intravenous Gamma Globulin (IVIg) (IVIg) in April 2004?

http://neuropathyjournal.org/my-first-experience-with-intravenous-gamma-globulin-ivig-4-of-12/

How Intravenous Gamma Globulin (IVIg) Affected My Long Term Neuropathy Symptoms

http://neuropathyjournal.org/how-intravenous-gamma-globulin-ivig-affected-my-long-term-neuropathy-symptoms-5-of-12/

Surgery while on Intravenous Gamma Globulin (IVIg) with CIDP

http://neuropathyjournal.org/surgery-while-on-intravenous-gamma-globulin-ivig-with-cidp-6-of-12/

What Happened When My Intravenous Gamma Globulin infusion (IVIg) Was Delayed

http://neuropathyjournal.org/what-happened-when-my-intravenous-gamma-globulin-infusion-ivig-was-delayed-7-of-12/

What Happened When My Intravenous Gamma Globulin (IVIg) Dosage Was Reduced

http://neuropathyjournal.org/what-happened-when-my-intravenous-gamma-globulin-ivig-dosage-was-reduced-8-of-12/

How Intravenous Gamma Globulin (IVIg) Infusions Has Affected My Life

http://neuropathyjournal.org/how-intravenous-gamma-globulin-ivig-infusions-has-affected-my-life-9-of-12/

What Doctors May Consider in Writing the Script for Intravenous Gamma Globulin (IVIg)

http://neuropathyjournal.org/what-doctors-may-consider-in-writing-the-script-for-intravenous-gamma-globulin-ivig-10-of-12/

Getting Help Accessing Intravenous Gamma Globulin (IVIg) and with Insurance and Product Brand Questions

http://neuropathyjournal.org/getting-help-accessing-intravenous-gamma-globulin-ivig-and-with-insurance-and-product-brand-questions-11-of-12/

Critical Needs in Intravenous Gamma Globulin (IVIg) Neuropathy Research and Training

http://neuropathyjournal.org/critical-needs-in-intravenous-gamma-globulin-ivig-neuropathy-research-12-of-12/

IG LIVING Magazine (Free for Neuropathy patients – covers use of IVIg and other subjects of interest.)

IG Living Subscription

https://secure.igliving.com/magazine/subscribe.aspx

One Size Does Not fit All

http://www.igliving.com/magazine/articles/IGL_2011-02_AR_An-Overview-of-Immune-Globulin-Dosing.pdf#search=”immunoglobulin”

IG Living (IVIg brands are different)

http://www.medscape.com/viewarticle/435952

Diagnosing and Treating GBS

http://www.igliving.com/magazine/articles/IGL_2011-04_AR_Diagnosing-and-Treating-Guillain-Barre-Syndrome.pdf#search=”immunoglobulin”

Subcutaneous IVIg

http://www.igliving.com/magazine/articles/IGL_2009-04_AR_Subcutaneous-Immunoglobulin-Infusion-A-New-Therapeutic-Option-in-CIDP.pdf#search=”immunoglobulin”

IVIg for Multifocal Motor Neuropathy

http://www.igliving.com/magazine/articles/IGL_2011-02_AR_Understanding_and_treating_multifocal_motor_neuropathy.pdf#search=”immunoglobulin”

Diagnosing and Treating Chronic Inflammatory Demyelinating Polyneuropathy with IVIg

http://www.igliving.com/magazine/articles/IGL_2012-10_AR_Diagnosing_and_Treating_Chronic_Inflammatory_Demyelinating_Polyneuropathy.pdf#search=”immunoglobulin”

Celiac Disease and Gluten Free Diets

http://www.igliving.com/magazine/articles/IGL_2014-08_AR_Celiac-Disease-and-Gluten-Free-Diets-for-the-Immune-Compromised.pdf#search=”immunoglobulin”

Fibromyalgia-the Mystery of Chronic Pain

http://www.igliving.com/magazine/articles/IGL_2013-06_AR_Fibromyalgia-The-Mystery-of-Chronic-Pain.pdf#search=”immunoglobulin”

BIO SUPPLY Magazine – Brands and controls for IVIg production

Bio-supply Quarterly

http://www.fffenterprises.com/resources/biosupply-trends-quarterly.html

Books on Neuropathy

Peripheral Neuropathy: When the Numbness, Weakness, and Pain Won’t Stop by Norman Latov MD PhD FAAN Order your copy at: http://www.amazon.com/s/ref=nb_sb_noss?url=search-alias%3Daps&field-keywords=Norman+Latov+Peripheral+neuropathy

Books by Mims Cushing (Hundreds of ideas from Patients who live with Neuropathy)

http://www.amazon.com/s/ref=nb_sb_noss?url=search-alias%3Daps&field-keywords=Books+by+Mims+Cushing+&rh=i%3Aaps%2Ck%3ABooks+by+Mims+Cushing+

MEDICAL: Textbook of Peripheral Neuropathy by Peter D. Donahue MD FAAN 2012 Professor, Vanderbilt Medical School, Nashville, TN Excellent: http://www.amazon.com/gp/search?index=books&linkCode=qs&keywords=9781617050343

MEDICAL FROM EUROPE: Peripheral Neuropathy & Neuropathic Pain: Into the Light by Professor Gerard Said, MD FRCP, Department of Neurologie, Hopital de la Salpetriere, Paris, France 2014. When ordering the book at the TFM link use the DISCOUNT code SOSN15 to save the cost of the postage.

http://www.tfmpublishing.com/neurology-and-neurosurgery/peripheral-neuropathy-neuropathic-pain

DVD’S on Neuropathy

Coping with Chronic Neuropathy DVD

http://neuropathysupportnetwork.org/coping-with-chronic-neuropathy-dvd/

Exercise for Neuropathy DVD

http://neuropathyjournal.org/exercise-for-neuropathy-dvd/

Discover Magazine – Chronic Pain

Why some patients differ in how they experience chronic pain!

http://discovermagazine.com/2011/jun/26-the-brain-tiny-key-to-terrible-lock