Where can I get help with accessing Intravenous Gamma Globulin (IVIg) and with insurance and product brand questions? By LtCol Eugene B Richardson, USA (Retired) BA, M.Div., Ed.M., MS (Counseling) and patient with CIDP/Autonomic PN for 42 years due to exposure to Agent Orange in Vietnam.
An excellent source of information can be found at FFF Enterprises BioSupply Quarterly, which publishes a quarterly magazine on the issues of IVIg. Their website is at BioSupply Quarterly:
Contact the Neuropathy Action Foundation and at the bottom of the opening page you will find their phone number and e mail address. Dominick Spatafora has MMN and fought to get IVIg and established this organization to help patients fight insurance company denials.
Today, May 9, 2016 I learned from a Nurse Educator that if Medicare A does not approve IVIg to then use coverage D noting IVIg is a drug to submit the request and that sometimes the copay is covered by various agencies to lesson this burden. (This information will be reviewed and perhaps expanded by the Nurse Educator in the near future to help in this regard to coverage.)
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PATIENT TO PATIENT – Disclaimer: Patient to Patient articles are intended to be educational, not diagnostic or prescriptive and the patient is encouraged to seek help from their own private physician. These articles reflect the subjective experience of the patient while living with neuropathy and Intravenous Gamma Globulin Infusions