A good start is to read Dr. Norman Latov’s book “Peripheral Neuropathy: When the Numbness, Weakness and Pain Won’t Stop” published by the American Academy of Neurology Press, available at Amazon for under $15. You should also read, and provide your doctor with a copy of, the article “How to […]
DVD Transcript “Coping with Chronic Neuropathy”
This transcript of the DVD “Coping with Chronic Neuropathy”, is another act of very hard work and love and prepared by Danielle Marie Boyd, Autoimmune Neuropathy Patient. We are very grateful for the work that went into this transcript especially since Danielle has limited use of her hands and it […]
Guidelines for Neuropathy Support Groups
Purpose of a Support Group or Network: It is very important that the purpose of the group be clear in your mind and in the mind of the group. Knowing the purpose will help everyone understand that while a group can be therapeutic by its very nature, it is […]
Hereditary Neuropathy Foundation
In support of our MISSION and VALUES, the Neuropathy Support Network is pleased to announce that the Network for Neuropathy Support, Inc., a non-profit 501c3 dba the Neuropathy Support Network has joined as a partner with The Hereditary Neuropathy Foundation to increase support for patients with the hereditary neuropathies AND […]
Genetic Testing
Doctor Latov in his book for patients speaks of the many types of genetic neuropathies and the genes involved. The most common of these is Chariot Marie Tooth disease or CMT. So where does a patients obtain genetic testing if they suspect a genetic neuropathy. The answer is to speak […]
Diagnosing Small Fiber Neuropathy
You’ve probably been hearing and reading more about small fiber neuropathy. Doctors can now make the diagnosis in their office, by doing a 3 mm skin punch biopsy and sending the specimen to Therapath for determination of epidermal nerve fiber density. The procedure takes only 5 to 10 minutes to perform, […]
Small Fiber Neuropathy
Many neuropathy patients have heard these words, “Your EMG and Nerve Conduct Studies are normal meaning you do not have neuropathy.” Right? Wrong. Dr. Norman Latov of Cornell University states clearly along with many other professionals that the EMG and Nerve Conduct Studies only measure damage to the large fibers. […]
Symptoms of Neuropathy
In 2015, the good news is that medicine has made great progress in the last decade in understanding Peripheral Neuropathy, acknowledging the symptoms, diagnostic skills, increased tests for diagnosis and some treatments which have proven successful for both the illness, neuropathic pain and loss of muscle control. Yet we still have a long way […]
Donors List
DONORS FROM 2012 – 2016 Is your name on it? If not, why not? What does the NSN do and why should a neuropathy patient or medical provider donate to the NSN? Operating two major neurologist websites loaded with neurologist reviewed information from unique perspective of the patient’s practical point of view. […]
Air Force C-123 fliers exposed to Agent Orange Recognized by IOM!
Retired Air Force Maj. Wes Carter joined by the members of the C-123 Veterans Association worked for years to have the Veterans Affairs Department (VA) recognize illnesses they’ve developed from exposure to Agent Orange (AO) in planes that were used for spraying AO during the Vietnam War and then for […]
