His nightmare began in 1969 – one year after leaving the Vietnam War. Symptoms of autonomic and polyneuropathy neuropathy affected his breathing with upper body paralysis that brought him to his knees and affected other parts of his body; mysterious chest pains, electric shocks, painful skin, physical exhaustion, unexplained silent […]
May, 2011
“WHY ME” versus “WHAT NOW”
In my forty-two year struggle with chronic neuropathy and with the loss of two great careers at the peak of productivity. The emotional toll on me could not have been greater over the years. Meeting the demands at work, playing with the children and grandchildren, doing simple routine tasks around […]
Your Choice is NOT Among Cures, Treatments and Coping!
Every neuropathy patient wants a cure for their illness. Don’t blame you, so do I. But is the choice among cures, treatments and coping? Prior to a seminar on coping with neuropathy, one patient asked, “Are you JUST going to tell us how to cope? I want to know how to […]
The Importance of Exercise and Neuropathy
“Appropriate exercise is a vital part of any CIDP intervention plan because of its potential to improve strength and endurance, thereby minimizing muscle shrinkage and improving function and mobility.” This quote is from an OUTSTANDING article in the August – September 2010 issue of I.G. Living (IGLiving.com). The article was […]
Physical Therapy, Exercise and Neuropathy
Article reviewed by Dr. Waden E. Emery III, MD, FAAN, Board Certified Neurologist, Lighthouse Point, Florida and endorsed by Karen Sheppard, Physical Therapist of Fort Lauderdale, Florida. Q: “Should someone with neuropathy do daily exercises so they don’t lose muscle strength? A: It is important to work closely with your […]
Support Group Ideas
The NSN TODAY journal will be a place for us to share ideas that work. This is a place to encourage one another as we seek ways to resolve issues to make our outreach more effective. The website idea grew to address the growing opportunity for active ongoing input by patients […]
An Interactive Journal of Support – Patients Helping Patients
The Neuropathy Support Network has developed the Neuropathy Journal , which is an interactive discussion between patients to strengthen their voice through knowledge. The Neuropathy Support Network’s mission is to support everyone involved with neuropathy. This includes patients, professionals, support group leaders, liaisons, neuropathy organizations and everyone involved in this battle for knowledge […]
Lesson #1: Knowledge and Experience are the Foundations for Learning
How am I going to engage in such a battle? Good question and you must begin, regardless of your education and background, believing that you can do it. All you need to do is learn how, one small step at a time. STEP ONE: Find knowledge and resources in the information […]
Humor from Contemporary Philosophers
Humor is inexpensive alternative medicine! Neuropathy Patient Billy Vaughan shared the following tidbits of HUMOR from some well-known philosophers of the modern age. “As I hurtled through space, one thought kept crossing my mind – every part of this rocket was supplied by the lowest bidder.” John Glenn “America is […]
PTSD: “Hometown Battlefield” a song by J.P. Cormier
To all my brothers of Vietnam or those suffering the challenge of Post Traumatic Stress Syndrome (PTSD) from any war. A friend of the Neuropathy Support Network sent this link about an inspiring courageous song and the experience with PTSD. This gift comes from our neighbors, sisters and brothers in […]
