• Why I need Intravenous Gamma Globulin Infusions (IVIg)

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    “Without IVIg, to breathe and speak simultaneously were impossible, motor functions ceased confining me to a wheelchair…” Without Intravenous Gamma Globulin Infusions (IVIg) my symptoms had become life threatening as noted by my treating Neurologist in 2005 and my quality of life was reduced to one level above insanity. Without […]

  • Doctor/Patient Relationships: Unlocking Doors

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    By understanding important elements of the Doctor/Patient relationship, patients can participate in unlocking barriers which too often prevent them from getting the most out of visits to a medical professional.

  • Medication Induced Neuropathy

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    Peter D. Donofrio, M.D. is professor of Neurology and director of the Neuromuscular Division of the Department of Neurology at Vanderbilt University Medical Center. He is director of Neuropathy Center at Vanderbilt. Read the excellent article by Dr. Donofrio on Medication Induced Neuropathy that is printed below.  The limits of the blood-brain and blood nerve barriers […]

  • West Nile Virus and Guillain-Barre Syndrome

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    The news about the danger of the West Nile Virus in some areas of the U.S. and other countries is known to most of us. Given this news on WNV, it is important that neuropathy patients and those patients with neurological illness, in areas prone to mosquito infestation, take extra precautions […]

  • Alternative and Complementary Medicines for Neuropathy

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    Before using any alternative medicines and complementary treatments it is strongly recommend you receive direction from your personal physician first. Below is a listing of just a few of the Alternative and Complementary Medicines for Neuropathy we feel are worth considering: ALPHA LIPOIC ACID Dr. Norman Latov in his book on peripheral neuropathy along […]

  • Zika virus and onset of Guillain-Barré Syndrome

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    NARBERTH, Pa., Jan. 26, 2016 — The GBS|CIDP Foundation International and its Global Medical Advisory Board is closely monitoring the suspected link between the Zika virus and the onset of Guillain-Barré Syndrome (GBS). GBS is a rare inflammatory disorder of the nerves outside of the brain and spinal cord with […]

  • What is Neuropathic Pain?

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    The physical cause of neuropathic pain is damaged peripheral nerves and as one medical expert notes, may also be due to the attempt of damaged nerves to fire across damaged sections of the peripheral nerve. See: References #1 to #3 Somatization Disorders Somatization disorder is a long-term (chronic) condition in […]

Featured Stories

Vitamin E

Can the lack of Vitamin E cause neuropathy?

A Neuropathy Patient wrote:  (Permission granted to use the story.) “My neuropathy is caused by long term malabsorbtion of vitamin E.  I saw a neurologist at Mayo Clinic, after years of “treatment” in my home town. The diagnosis was polyradiculoneuropathy with ataxia. Why do I not see more information about […]

Rock Guitar Legend Eric Clapton Reveals He Suffers from Peripheral Neuropathy

Rock Icon Eric Clapton Reveals He Has Peripheral Neuropathy

Guitar legend, Eric Clapton has told Classic Rock Magazine Peripheral Neuropathy makes playing guitar “hard work”. Clapton has had an unprecedented career including being ranked number 2 in a list of 100 greatest guitarists of all time by Rolling Stone; 17 Grammy Awards; and the only musician to be inducted into the Rock and Roll Hall of Fame three times.

Medication Induced Neuropathy

Medication Induced Neuropathy

Peter D. Donofrio, M.D. is professor of Neurology and director of the Neuromuscular Division of the Department of Neurology at Vanderbilt University Medical Center. He is director of Neuropathy Center at Vanderbilt. Read the excellent article by Dr. Donofrio on Medication Induced Neuropathy that is printed below.  The limits of the blood-brain and blood nerve barriers […]

Neuropathic Pain

what is Neuropathic Pain

What is Neuropathic Pain?

The physical cause of neuropathic pain is damaged peripheral nerves and as one medical expert notes, may also be due to the attempt of damaged nerves to fire across damaged sections of the peripheral nerve. See: References #1 to #3 Somatization Disorders Somatization disorder is a long-term (chronic) condition in […]

Treating Neuropathic Pain - Neuropathy Support Network

How is Neuropathic Pain Treated?

FACT: Neuropathic pain does NOT respond to ‘normal’ pain medications. Pain signals from an external stimulus like a cut or from an internal broken bone are treated with many well-known treatment options for pain. Pain signals from damaged nerves which send real, but faulty signals to the brain must be […]

Bio-Feedback2

When Suffering from Neuropathic Pain Biofeedback May Be an Option

When suffering from Neuropathic Pain biofeedback may be a possible option. Patients who are considering opiates, which can turn out to be more of a problem than the disease – should read Andy Griffiths’ story (of TV fame) who notes the success of Biofeedback in his story (page 96ff) in the […]

Why Some Patients Appear to Cope Better with Chronic Pain

Why Some Cope Better with Chronic Pain

NOTE: The science in this article is based upon a review of, “The Brain” by Carl Zimmer, Award Winning Biology writer, June 2011 issue of DISCOVER Magazine. It is highly recommended that you read this great article. There are no medical tools, stethoscopes or thermometers, to measure or determine objectively […]

About Peripheral Neuropathy

10 Things You May Not Know About Diabetic Neuropathy

10 Things You May Not Know About Diabetic Neuropathy

Media Planet’s “Future of Personal Health” a publishing house in New York published the article on “Diabetic Neuropathy” written by Eugene B. Richardson, MED, MS President, Neuropathy Support Network and Waden E. Emery, M.D., FAAN, Clinical Neuromuscular Neurologist, Emery Neuroscience Center.  Scroll down to see the article or click on […]

Managing Neuropathy, Anxiety, and Depression

Managing Neuropathy, Anxiety, and Depression

Anxiety and depression—two unique conditions that often co-exist—are common responses to chronic illnesses such as neuropathy that deserve attention and need to be screened for and managed [1]. Left untreated, these conditions can slow the treatment of each other and worsen physical and psychological disability, thus increasing neuropathy’s burden and […]

Neuropathy Symptoms

Top Twenty Symptoms of Peripheral Neuropathy

Each person’s experience varies depending on their type of Neuropathy, but in general following are the most common Symptoms of Peripheral Neuropathy: 1) Severe strange pains in your feet, legs, hands and other parts of the body; including “crawling insects” under your skin; 2) Balance is difficult when walking, getting […]

Small Fiber Neuropathy

Small Fiber Neuropathy

Many neuropathy patients have heard these words, “Your EMG and Nerve Conduct Studies are normal meaning you do not have neuropathy.” Right? Wrong. Dr. Norman Latov of Cornell University states clearly along with many other professionals that the EMG and Nerve Conduct Studies only measure damage to the large fibers. […]

Chemotherapy-Induced Neuropathy

Chemotherapy Induced Neuropathy

Cancer Related Neuropathies

The most common of these is Chemotherapy Induced Neuropathy. But, a cancer survivor may also develop neuropathy as a result of the cancer itself; surgery to remove the cancer; or as a result of radiation treatments. It is important for a cancer patient to work closely with their Oncologist and […]

Cancer Induced Neuropathy

Cancer Induced Polyneuropathy

Linda McIntosh, RN serves on the Board of Directors for the Neuropathy Support Network and is a tireless worker on behalf of neuropathy patients and health care professionals in the State of Connecticut. Linda has conducted many meetings to reach the professional community in her area, as well as neuropathy […]

Chemotherapy Induced Neuropathy

Living with Chemotherapy Induced Neuropathy

March, 2009 was the beginning of a harrowing journey that drastically changed my life. It was the month I was diagnosed with stage 3 (bordering on stage 4) colon cancer. After my surgery I began adjuvant chemotherapy. Adjuvant chemotherapy is chemotherapy received after the cancer is surgically removed. The surgery […]

Idiopathic Neuropathy

The Problem with a Diagnosis of Idiopathic Neuropathy

The Problem with a Diagnosis of Idiopathic Neuropathy

Idiopathic Neuropathy according to medical experts writing in the Journal of the Peripheral Nervous System should be considered as a disease entity in and of itself.  It is recommended that this condition be diagnosed as Chronic Idiopathic Axonal Polyneuropathy or (CIAP) as a major health problem.  (See reference 1.) I would […]

diagnosis of idiopathic neuropathy

Do Not Settle With a Diagnosis of Idiopathic Neuropathy

We receive hundreds of questions a year from neuropathy patients looking for more information. For many it is the first time they have been diagnosed. Following is one of our most common questions: “For quite some time I have been suffering from strange symptoms from numbness in my feet and […]

Idiopathic Neuropathy What to do now

Idiopathic Neuropathy: What do I do now?

A good start is to read Dr. Norman Latov’s book “Peripheral Neuropathy: When the Numbness, Weakness and Pain Won’t Stop” published by the American Academy of Neurology Press, available at Amazon for under $15. You should also read, and provide your doctor with a copy of, the article “How to […]

Emotional Health

Will My Neuropathy Get Worse?

Will My Neuropathy Get Worse?

One issue neuropathy patient’s face is the fear that their neuropathy will grow progressively worse. Neurologists call this a progressive polyneuropathy. The truth: no one really knows if your neuropathy will worsen, stay the same or disappear. A neurologist shared that this may have more to do with the underlying […]

Coping With Neuropathy 1.0: Pain, Anxiety, and Depression

Coping With Neuropathy Pain, Anxiety, & Depression

By Scott Berman MD, Psychiatrist and Neuropathy Patient, who is a Medical Advisor and Member of the Board of Directors of the NSN. Author of: Coping with Peripheral Neuropathy  From Support for Neuropathy: Facebook Chat October 6 2011 There is a strong overlap between neuropathy pain, anxiety, and depression. Each of […]

“WHY ME” versus “WHAT NOW”

In my forty-two year struggle with chronic neuropathy and with the loss of two great careers at the peak of productivity. The emotional toll on me could not have been greater over the years. Meeting the demands at work, playing with the children and grandchildren, doing simple routine tasks around […]

Agent Orange

Why I need Intravenous Gamma Globulin Infusions IVIG

Why I need Intravenous Gamma Globulin Infusions (IVIg)

“Without IVIg, to breathe and speak simultaneously were impossible, motor functions ceased confining me to a wheelchair…” Without Intravenous Gamma Globulin Infusions (IVIg) my symptoms had become life threatening as noted by my treating Neurologist in 2005 and my quality of life was reduced to one level above insanity. Without […]

Toxic Neuropathies

Toxic Neuropathies

Toxic Neuropathies is a very large subject and we will deal only with a few issues in this article. In a conversation I had with Dr. Waden Emery, MD FAAN Neuromuscular Neurologist, we discussed diabetic neuropathy and the many unanswered questions about the cause, as it is now thought the culprit may […]

Air Force C-123 fliers exposed to Agent Orange

Air Force C-123 fliers exposed to Agent Orange Recognized by IOM!

Retired Air Force Maj. Wes Carter joined by the members of the C-123 Veterans Association worked for years to have the Veterans Affairs Department (VA) recognize illnesses they’ve developed from exposure to Agent Orange (AO) in planes that were used for spraying AO during the Vietnam War and then for […]

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