What are the critical needs in Intravenous Gamma Globulin (IVIg) research and clinical training for these neuropathies?
By LtCol Eugene B Richardson, USA (Retired) BA, M.Div., Ed.M., MS (Counseling) and patient with CIDP/Autonomic PN for 42 years due to exposure to Agent Orange in Vietnam.
Research is CRITICALLY needed for a broadly accepted standard for diagnosis of each of the neuropathies!
Research is CRITCIALLY needed for determining the proper dosage, the proper infusion rate, the frequency of the infusion, and fluid volume issues for patients with these neuropathies. The recent Journal of the Peripheral Nervous System, published by the Peripheral Nerve Society has recently published articles in this regard. See Volume 19, No. 3, September 2014. (There is a charge for looking at this article). Recent textbooks (2012) on Peripheral Neuropathy do not appear to address this important subject.
Proper clinical training for neurologists and other medical disciplines is a critical need based on the research and current knowledge available. The lack of clinical training in medical schools, in the testing for the cause and approaches to treatment of neuropathy is the basis for many of the frequent failures to treat and diagnose many neuropathy patients and the failure in the proper administration of IVIg!
My question is how do you get the information that is published in the Journal of the Peripheral Nervous System out to the clinicians? Hopefully, we can work with others to participate in the annual conferences of neurology and related disciplines to provide updates on this information regarding the diagnosis and treatment of the neuropathies.
Finally, Doctors and not insurance companies, Pharmacists, or Hospital Administrators must be put back in charge of the medical treatment decisions for the neuropathy patient. Currently in 2015 the doctors are spending much time as ‘secretaries’ meeting the increasing over burdening bureaucratic details in reporting systems to Medicare and other insurance companies. Today, doctors not only must mention the date of an injury or medical event but must be specific as to the day of the week even with the date! When do the medical lawyers stop and the doctors regain their rightful place in the medical system?
NOTE: Copyright 2010-16 Network For Neuropathy Support, Inc. dba Neuropathy Support Network.. This article may be reprinted or published for educational purposes as long as the printing or publishing is not for profit and acknowledgement is granted the author. Contact him at E-mail: firstname.lastname@example.org
PATIENT TO PATIENT – Disclaimer: Patient to Patient articles are intended to be educational, not diagnostic or prescriptive and the patient is encouraged to seek help from their own private physician. These articles reflect the subjective experience of the patient while living with neuropathy and Intravenous Gamma Globulin Infusions